Kevin Hall understands the pros and cons of being labeled. And he knows that what really matters is doing your best.
By Kevin Hall Leave a Comment
Until just the other day, my wife and I consistently beat ourselves black and blue as parents. We figured that we weren’t doing (X, Y, Z) quite right. We thought maybe we were feeding our oldest son (a, b, c) when it should have been (e, f, g.)
From now on, our son will be “a boy with autism” instead of just a boy.
As it turns out, our eleven-year-old boy isn’t wired for social cues and empathy. We’ve known this intuitively for much of his life, we’ve heard it anecdotally from school teachers and principals. But I’ve been very reluctant to seek a diagnosis for him. I was branded bipolar by the medical model at age nineteen. It has left debilitating scars even if it has saved my life.
With our son’s brand-new diagnosis of autism comes understanding, explanation, and a world of forgiveness. All because of a simple word. But what has actually changed?
Absolutely nothing. He is the same boy. We are the same parents. We love him.
Absolutely everything. He is doing his best, with the wiring and tools he has. Sometimes his behavior doesn’t fit the world around him very well.
I can now see that my son has been doing an incredible job at school socially, given that he’s had to construct an intellectual model of social interactions and expectations. He doesn’t receive all the subtly coded non-verbal information that the rest of us do.
I can see that my wife and I have been good parents, that we might do well to ignore much of mainstream media parenting advice that never would have worked for him (other than the love bit.)
It didn’t always seem to them like I was doing my best. The label helped a lot though. We could describe some of my antics or apathy as disorder—not intentional disaster.
I can see that my son may have a life ahead of him on the razor’s edge of labels. There will be solidarity with an in-group, acceptance, and practical tools, while at the same time he is set apart from neuro-typical. (On this topic, I cannot recommend enough Andrew Solomon’s Far from the Tree.)
From now on, our son will be “a boy with autism” instead of just a boy. He will become aware that while he wants nothing more than to be “just another boy,” it will often serve him better to be a boy with a label.
As a manic depressive father, I am grateful that I have twenty-five years of experience walking this knife-edge of identities. As his life gets more complicated, I may be able to help my son navigate ambiguous terrain better than I otherwise would have. I hope so.
A while ago I was enjoying the podcast of a conversation between Alanis Morissette and another guest. Things got a little heated. They chose to agree to disagree about whether it was right to say that everybody was “doing their best.” They did this so that they could move the podcast along. Alanis was advocating the perspective that people were always doing their best, that some behaviors betrayed less-than-optimal natures or nurtures, or trauma, or all three.
I’ve lived with manic depression since I was in college. My family has had to support me through some rough patches. It didn’t always seem to them like I was doing my best. The label helped a lot though. We could describe some of my antics or apathy as disorder—not intentional disaster.
I’ve only ever yelled at my sister once as an adult, when she said, “I know you want to not have to be responsible for that time ….” I jumped down her throat and screamed that I wanted nothing in the world more than to have been able to be responsible for that time.
We agreed to disagree.
For a thrilling way to bracket one end of the “doing their best debate”, check out neuroscientist Sam Harris’s position that free will itself is illusory. From that starting point, you can’t even ask the question whether someone is doing their best.
At the other end of the spectrum is the Western capitalist ethos, which tries to suggest you always get what you deserve. We admire so many of its tenets that we sometimes forget they don’t apply to all walks of life.
Where do you stand on the “Everybody is doing their best” spectrum?